Getting to know the person behind the blog with a Questions & Answers session.
Q. How old are you?
A. 40 – I had my Birthday on March 30th, 2 days after coming out of the hospital after having my transplant in 2017.
Q. Where were you born?
A. London, but grew up in Kent.
Q. When were you diagnosed with PSC?
A. I believe I had PSC from around 2006/2007 but was diagnosed in 2008.
Q. Worst part of having PSC?
A. The unpredictable nature of the illness, not knowing what will happen next and the stigma attached to having a liver disease.
Q. ERCP or Colonoscopy?
A. Errrr… who is coming up with these questions? Neither of course.
Q. How has or did PSC have an impact on your life?
A. When you first get diagnosed with PSC you do not realise the journey you are about to go on which is comparable to being on a roller coaster. PSC has had a profound impact on my life and the life of my family as everyone becomes part of the illness, even if they try not be. Furthermore, the things we all take for granted that used to be easy, slowly become harder and harder.
As mentioned in previous blog posts, fatigue and the itching were the hardest things to deal with. How we get through it I will never know, but we do.
Another huge impact PSC has had on my life is moving to Cyprus. I moved to Cyprus in 2008 and everyone I know and have met, only know me as the man with a very strange illness. It will be nice going back as the new me.
Q. How would you describe PSC to someone that had no knowledge of the illness?
A. When I met someone before I had my transplant, it would normally go along the lines of… I have a liver disease which is not caused by excessive alcohol consumption. The bile ducts are narrowed and often get blocked. At this point you see a blank face so, I used to quickly switch to something a bit easier like, I get very itchy which is uncontrollable and I often get extremely tired.
Q. Is it a myth that hospital food is not very nice?
A. From my experience of having a liver transplant, I can say that the food was very good considering it was mass catering. Lots of choice for breakfast, lunch and dinner, as well as many cups of tea and coffee in between. I couldn’t complain. So yes, for me it is a myth.
Q. With the NHS being so underfunded, did you notice this when you had your transplant?
A. Certainly not. Along with the donor, the NHS saved my life and treated me very well. I owe the NHS a debt of gratitude and my young children are getting their dad back. The NHS is amazing.
Q. Do you have any advice for anyone suffering from PSC?
A. This is a hard question as the illness affects everyone in different ways. I would say stay strong, stay positive, keep as well and as fit as you can and know that you are not alone. It is an illness waiting to be conquered.
Q. The Beatles or The Who?
A. Very hard choice. I would say the Beatles for many reasons, but like to think of myself as a bit of a Mod so would lean towards The Who. Both amazing though.
Q. Favourite movie?
A. As a good Mod, I have to say Quadrophenia. ” You gonna be one of the faces down there are you?” “What do you mean gonna be? I am one of the faces”
Q. Vintage Mini or 1960’s Vespa?
A. My first car, like most people, was a mini. Loved it. Never had a scooter though, but would love one. However, the roads in Cyprus are maybe a bit crazy for me to be riding around on a Scooter.
Q. What are your aims for 2018?
A. After having my transplant, my aims for 2018 include looking after my liver, enjoying each day and making sure I treasure the extra time I now have with my family.
Stay strong, stay positive and thanks for reading.
Peace Love & Light